PrEP 2015: a very blue year

blue year

2015 has been quite a year. A brilliant year of developments on PrEP (HIV prevention) and deconstructing HIV stigma.

It hasn’t been an easy year by any stretch of the imagination and I’ve had a few personal curve balls thrown in for good measure. But such is life.

I want to take a moment to look back on our progress particularly in the PrEP arena.

At the start of 2015 there was a considerable amount of noise being made in the US by Damon L Jacobs and his facebook crew of PrEPsters in the PrEP Facts:Rethinking HIV Prevention group. This family of HIV prevention enthusiasts, users and advocates is currently sitting at a substantial tally of 12,500 people. The group’s significance within and contribution to the PrEP community even caught the attention of WHO (World Health Organisation) this year.

damon

But here in the UK it didn’t seem like we were making that much noise at all. There were a few random mentions from scene magazines and the odd share of an article here and there. I shared and posted as much as I could find and it was being well received as a concept.

I felt reassured that PrEP would catch on here in the UK when it was made available. I was perhaps a little too naive in making that presumption at that point. In hindsight, it was being well received as a concept because it was nothing more than that.
A concept. Not a practice or an option that was available or likely to be available in the near future.

I know this now…but I didn’t know it back then. Discovering hostility towards PrEP was unexpected and came with a hefty emotional price tag for me.

My own PrEP journey was a very short lived one indeed! Late one Tuesday evening (11th Aug). I managed to get hold of 2 months of Truvada from a HIV positive friend who had changed his meds. I decided that I would document my experience, every sexual encounter, chill out, sex party and screen for STIs every month for 6 months and write my Truvada Diary.

The next morning I hopped on a bus to Dean Street Express to have a HIV test to confirm that I was HIV negative (last tested negative Easter 2014) I had written the opening section of my PrEP journey by the time I had arrived at the clinic. 20 minutes later I was diagnosed as HIV positive. The irony! So that put an end to my PrEP diary. Instead I began writing my diagnosis diaries – This is Me part 1, part 2 and part 3.

My public disclosure on social media and the subsequent publishing of my diaries raised my visibility and awareness of PrEP and the immediate necessity for it so much that I just couldn’t cope with the amount of enquiries that I would receive on Facebook, Twitter and email.

This is when the option of importing generic PrEP was brought to my attention and really took hold. After a few
discussions with my buddy Alex Craddock and meetings some knowledgeable friends, the idea for www.iwantPrEPnow.co.uk was born.

We were going to build a website with all of the info you needed on PrEP and with links to buy genuine and legitimate generic PrEP from trusted sellers. We knew the website would take us about 4-5 weeks to build in our free time so we set about that with immediate effect.

What I identified I could do in the interim between that point and our launch was to raise awareness and test the waters. I want to gauge exactly what the feeling towards PrEP was.

We would be making access to PrEP a reality and not just raising awareness of some unobtainable new HIV prevention concept.

The reaction was not what I expected and not what I wanted to deal with at that time in my life but there wasn’t much choice.

PrEP was being smacked down quite regularly and quite aggressively.

Here I was, a very newly diagnosed HIV positive gay guy being berated and attacked for pushing for PrEP.

It was a little heartbreaking.

Why couldn’t these people see the potential of PrEP?

Why were they so averse to the idea?

I realised I had to reconcile that within myself and find a way to relate and connect to these people. The solution presented itself quite clearly and promptly. Just be honest. Just tell your story.

No one wants to catch HIV. There is a tool that is almost 100% effective at protecting you from HIV.

I managed to get hold of it. But I was a few months too late. Just state the situation and leave it there.

It seemed to work.

I was also aware that people don’t like to read pieces of text. Especially on something they are not too interested in. So I went with some very simple, very basic images. I am no graphic designer! These memes were created on an app on my iPhone. And here they are…

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It passed by without too much controversy. That wasn’t to last! Next up was a play on Apple’s incredibly irritating auto-correct of the work fuck to duck! If you use the word fuck as much as I do then this little text amend is DUCKING annoying…

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Again, I thought this was palatable. It’s a blue duck – who can have an issue with that? Quite a few people it would seem! Instantly the cries sprang up of

“Are you saying we should abandon condoms?”  

“This is totally irresponsible and reckless of you”

“You are sending out the wrong message here Greg”

“What about other STIs. PrEP doesn’t protect you from those”

I wasn’t really prepared for that reaction and I hadn’t formulated a response. Little did I know that a few short months later I would be so sick and infuriated by that ‘other STIs’ question that I would have lost my patience and found the balls to write an article titled ‘Fuck other STIs’. But at that moment it shook me a little so I tried to dampen the argument with this.

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It immediately silenced those critics. So we were learning and we were on to something. By introducing the word ‘extra’ into the positioning of PrEP we could get people to start thinking about PrEP itself and not what using it implied – ie abandoning condoms. I tested it out with the next image.

015

This one went down really well! The very same people who were busting my ass over the barebacking rubber duck were now on board and thanking me for behaving responsibly with a healthy and inclusive message. So I took it a step further.

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Then I put PrEP in the tool kit.

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It seemed too simple but it really was that straight forward. Use the word ‘extra’. Make PrEP an additional tool and position it with condoms – not instead of. People stopped trying to run me out of town! But again, I had a feeling that would be short lived. We hadn’t introduced the sexual element yet. So I ran with this.

smurf

As expected the pitch forks came out again.

What is it with people in the UK and the horror that sets in when something appears to be sexual? I’m still getting my head around that one.

But now the comments coming in were accusing me of trivialising safer sex by releasing the sexy Smurfs. In fact that couldn’t be further from the truth. PrEP is HIV safer sex. So is condomless sex with a HIV positive undetectable guy.

At that point I realised that I wasn’t ever going to be able to please everyone. So I stopped trying.

And that was liberating! For the sake of the objective at hand I decided to revert (temporarily) to inoffensive, non-sexual subject matter.

010

The lightbulb was safe and for some reason people liked it. It’s one of my least favorites. I had given up trying to predict what would and would not be received well! The watch was up next.

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When this image went out on Twitter a good friend and colleague from a HIV charity tweeted me to say that he loved the image but that it was factually incorrect.

PrEP is not here as it is not accessible yet.

Little did he know that in a few weeks PrEP would be here and accessible through www.iwantprepnow.co.uk – admitedly not for free but it was here! The images were getting  a fair amount of attention now and I started getting requests. Here are a few of the requests.

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I know this tag line is from Sesame Street but it kind of worked here.

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Who knew gay men loved The Smurfs, The Muppets and Sesame Street?

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And it was no surprise that the Diva went down well!

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Then I changed the direction slightly as the reaction towards PrEP warmed.

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This next image has the wrong tag line again – my mistake. ‘You Got a Friend in Me’ is from Toy Story. The song from Aladdin is ‘You Ain’t Never Had a Friend Like Me’. I didn’t think it was that big of a deal until I happened to catch Aladdin on television a few days ago and watched Genie and Aladdin in that number and in fact – you ain’t never had a friend like PrEP!

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The set isn’t complete without drawing a little attention to slut shaming….

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And realising that the way a person chooses to protect themselves from whatever is and always should be totally their choice and they should be fully supported in the choices they make for themselves.

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Recently I have been able to release a few images that need no disclaimers or pacifiers.

It’s nice to see David Cameron get involved with PrEP…

pig

And push it real good…

salt

The website www.iwantPrEPnow.co.uk has even been discussed at BHIVA by Dr Mags Portman.

bhiva

At BHIVA’s European HIV Hepatitis Co-infection (EHHC) Conference by Dr Andrew Hill.

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And most recently Alex Craddock (iwantPrEPnow co-founder) featured on Channel 4 News alongside our PrEP siblings and their site PrEPster

In my opinion this year has seen the UK MSM community stop slut shaming and challenging the benefits of PrEP. In the summer most of my conversations about PrEP were loaded with shaming, ridicule, dismissiveness, divisive statements, fear, resistance and a lack of knowledge.

Today with just 2 weeks left of 2015 I can tell you that the amount of interaction and conversations I have with people about PrEP has more than doubled – perhaps even tripled.

Now those conversations are predominantly from people wanting PrEP now with well constructed questions on the finer details and specifics of being on PrEP or preparing to start PrEP.

This is amazing. We have turned a corner and the road ahead looks promising. 2016 is going to be a very exciting year. 

Merry Christmas and a happy new year!

Continue reading “PrEP 2015: a very blue year”

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DO YOU KNOW

do you know

(Photography by Laurie Poole – click here)

I have said from the very start of this journey that I wasn’t going to regret what has happened in my past that led me to this point. That I wouldn’t deal in ANY guilt and that I would be a winner not a victim. I have said it before – no one gave me HIV. I made choices and as a result of those I got HIV. That means, me, myself – I. I am the only person I am holding accountable. But ‘Do you know who?’ is a common and regular question that I get asked by people when discussing my life and HIV positive status. That question pisses off some HIV positive people and I can understand why. I’m cool with the question because I also understand why people ask it and I can always see the huge immediate and potential  future benefits of being kind and straight up enough to allow and encourage ANY discussion.

“Do you know who?”

My answer is always the same. No, I don’t. And It doesn’t matter to me. It’s done now. I can’t change it. Why waste that energy trying to figure it out and drive myself nuts with endless questions upon questions. I don’t need to allocate blame. I can better use that energy and mental capacity to change the things I can. Stigma and PrEP have been the things I identified (even when I was HIV negative) that I could change and drive awareness of. So I picked my battles. They are my battles and I refuse to have a battle with myself. One thing my diagnosis changed in me was my tendency to mope about things and waste my emotions and frustrations on things that really didn’t warrant the gift of my attention. In simpler terms – I went from having a very low tolerance to bullshit to having ZERO tolerance to it!

Another thing that I have said before and that I have expressed my gratitude for is the fact that I haven’t been excessively sexually active this year and although I obviously had been having sex where I and other people would have been at risk of HIV. From the little bit of deduction that I could do, I thought that I could be pretty sure that I hadn’t passed it on to anyone else. There was one guy that I was kind of seeing earlier this year that I got in touch with the day after I found out and he just by chance had been tested the week before and was still negative. As soon as I knew he was OK and informed about the situation and my family knew, I then posted that I was HIV positive on facebook – for 5000 friends. I knew that would indirectly take care of informing anyone else that might have concerns.

But it wasn’t really that simple and that wasn’t exactly the whole truth.

There were 2 guys that I have had sex with in the last year that stuck in my mind as people that I maybe should have got in touch with personally. The first guy – Carl, who I fucked and came inside of at a sex party, wasn’t someone I exchanged contact details with. I didn’t know how to go about finding him. And the other guy – Marco, who I met at a party and spent the best part of a day with. A really sweet, funny, sarcastic guy who I genuinely connected with – even through the haze of chems. Marco was a facebook friend so I guessed he was taken care of.

The truth is I really couldn’t find the courage at that point to make contact. I wasn’t shaken too much by my diagnosis but one of my biggest fears was that I had given the virus to someone else – admittedly without knowing but it still had the potential to kill me with guilt. I don’t like guilt. As life would have it Carl (the guy from the sex party who I came inside) was in my Sainsbury’s local 5 days after my diagnosis! I was not prepared to see him, let alone almost trip over him. I completely freaked. I was suddenly aware and anxious that because of the amount of attention my HIV facebook post got that he would probably now know trough someone else even though we’re weren’t friends. I don’t think I have ever made my way from the fruit and veg aisle to the till and straight back out of that Sainsbury’s in such record breaking time!

I felt cowardly for sure but what were my options?

It’s hard enough to speak to someone you have fucked at a sex party in your local supermarket when you are both sober at the best of times – let alone when you’re trying to drop in ‘Maybe you should go for a HIV test’.

That was back in mid August and over the last few months I’ve let go off a lot of that crazy stuff you do to yourself when you’re first diagnosed. It’s called normalising. But life, circumstances and coincidence weren’t done with me just yet – as I was about to find out….

Last month there was a ‘secret gig’ on at Heaven where I used to work and I was running a guestlist for it. I invited 1000 of my ‘London friends’ on facebook. All they had to do was turn up at the door and give my name.

I was outside Heaven in the smoking area having a cigarette on my own when all of the sudden Marco walks into the smoking area. There were only 2 other guys and then Marco and I. I had just lit my cigarette and he had just lit his – there was no option of fleeing this situation ala my Sainsbury’s sprint from Carl. I looked at Marco square in the eye as he did me and we both smiled and said ‘Hey’.

Inside I was not saying HEY! Inside I was screaming and praying that it wasn’t flashing up on my face like a neon sign.

I could tell from the look in his eyes that he KNEW.

He knew and he wasn’t going to bring it up. I could feel he was going to be kind. I could tell he was nervous but I also didn’t find him as shocked to see me as I was him.  I was genuinely happy to see him again but my smile was pure fronting. I couldn’t allow myself to do anything other than front some sort of cool HIV confident calmness.

No one prepares you for these moments. There is no way to. All you can do is hope for kindness.

It was over to him now. Before I knew it there had been a hug and a polite and friendly kiss on the cheek. I told him that I was really surprised to see him out in a gay club (he’s not out to his family, they are a very prominent Catholic Italian family and not so cool with the whole gay thing). Marco said that he’d seen my facebook post and he wanted to check out the gig – so he was actually here on my guest list! I found this a little bit hilarious too! A non-out guy – at a secret gig for a new boyband that was also being hosted by a drag queen from Ru Paul’s drag race – which he loves!

I was hoping for his sake that he didn’t let his family flick through his Sky Plus ‘recorded programmes’ or the cat might be out of the bag and ‘sissying that walk’! I was pleased that he’d felt confident enough to show up at something that was so out of his comfort zone. We had a really pleasant chat and the usual banter. I explained that my date was inside and that I needed to get back to him. It was all very courteous and I thought – cool. That’s that all done and wrapped up now. Wrong again….

Last week I was invited to the re-launch party of Gay Times magazine. I was pretty nervous because big industry events make me kind of anxious. I’m standing at the bar – drinking too much free prosecco and replying to an email when I look up from my iPhone and see Marco strutting towards the bar! Oh for fuck sake! Like I’m not anxious enough already!? – this dude is here too! I couldn’t figure out how the hell he’d actually managed to get into an ‘invite only’ gay media event as someone who….

A – isn’t out as gay and B – doesn’t work in media!!!

It’s also totally bizarre because I had just been thinking about him during the week and how I was a bit proud of him for deciding to try to start owning his situation and his sexuality a bit more.

I remembered that I’d inadvertently hurt Marco a little bit at the party we met at earlier in the year by too harshly proclaiming that I would NEVER have another boyfriend or even date another guy that wasn’t out to his family. As soon as I said it I could see his heart sink. Not because I’d dashed his hopes of dating me – we fucked that was it. But because I had shamed him and removed a bit of his value and worth – just because he hadn’t managed to navigate that part of his life yet. That was totally unintentional but none the less quite mean and a bit cruel – I should have been more mindful and kinder. But at that point in my life as a result of the pain I’d endured because my ex had struggled with this same thing, I really could not see any valid excuse why an educated, funny, confident, clever and very emotionally intelligent man in his 30’s could not have ‘the balls’ to be out to his family.

Without disclosing too much of Marco’s personal circumstances, after he licked his wounds for an hour or so, he told me why he wasn’t out to his family. And it had nothing to do with being cowardly, it was out of love.

Despite the fact that he was noticeably disappointed by my ignorant and quite arrogant dig at him earlier – he didn’t lash back. Instead he settled himself and afford me the privilage of hearing his story. Which must have been hard for him to tell. I knew it was not a story he told often and I appreciated his honesty, vulnerability and openess. He taught me about him and his situation and more importantly he taught me about me and changed me a little bit.

This is something a lot of people don’t understand about gay men. Sometimes we are in episodes of taking drugs and having reckless sex but there is always a reason why. Usually a very simple and understandable reason why we are behaving in certain, sometimes reckless and often unhealthy ways. For me it was because I was heart broken from the fall out of a 7 year relationship. For Marco it was the struggle to be gay without the option of coming out to his family and establishing solid foundations for himself as his true self.

I hadn’t been in contact with Marco apart from a couple of facebook messages in the few days after we met at that party, had great sex and great conversations. But Marco and the insight he gave me has stayed with me. And here he was at the same party as me again for the second time in a month. There was the standard smile and a hug. I asked him if I needed to block him from my facebook? If he was going to keep turning up to events that I was at. Stalker much???

He informed me that actually my DJ friend Chris who was playing at the party had invited him. I thought – how cool! You came to one gig, met some of my friends and made them your own friends and now you’re doing your thing. I was really chuffed.

When Chris had finished his set. I told him Marco was here somewhere and that I didn’t know they had become friends. Chris then just casually dropped in ‘Oh yeah Marco! I’m kinda seeing him, he’s here as my date’

FOR FUCK SAKE!!!!

I thought all my HIV bullshit and anxiety was wrapped up and packed away….but here it was again!!! Biting at my ankles now!

Marco – a guy I fucked bareback while I might have been HIV positive was now seeing my mate and I haven’t had ‘that’ chat with Marco yet!

I felt physically sick at the series of possible knock ons that I could see unfold in front of me. I don’t know what part of me kicked into gear at that point but it was clear that Chris, Marco and I were all going to spend the next few hours hanging out together. Now was not the time to try to address this situation but it became very clear to me that now was certainly the time for me to stop running. I could see the direct implications this might have on my friend Chris and his health if I didn’t own this at some point really soon. I think total temporary denial kicked in. I would deal with this tomorrow when I could pin Marco down privately on facebook.

So the day after the party, with a stinking hangover and pure dread in my belly, I reluctantly opened the discussion and most likely the can of worms with Marco. It all started very cautiously…

Greg Owen : Hey Marco was nice to see you again last night. I’m pretty sure you know all of my shade was in good humour but just thought I’d make sure. It’s actually very sweet to see you hanging out with Chris..he’s a really nice guy. It is a ridiculously small world!! X

There was a good 20 minutes of messages back and forth. Finding any sarcastic, borderline offensive or shady thing throw at each other before I could pluck up the courage to make my opening. I don’t know Marco well but I know him well enough to know he knew exactly what was coming. I made a pitch with…

Greg Owen: So I was a bit freaked out when Chris told me you were seeing each other

Marco reassured me that he had told Chris that we’d hooked up before and Chris was fine with it but he was sorry if  that made me uncomfortable but why was I uncomfortable?

I still hadn’t found the momentum to drop HIV into our thread yet so it reverted back to me saying that I just get uncomfortable about things like that because I don’t like upsetting anyone or muddying the waters with my friends…I was trying every creative version I could think of to address the elephant in the room without actually having to say it – I got the feeling he was doing the same thing.

Eventually the anxiety got to me and I just took a leap of faith.

Greg Owen: It’s ok, it’s cool. I don’t mind you talking to him about it but I’m gonna be a bit honest now…I was a bit freaked out because I haven’t asked you if you got tested since I found out I was HIV+. I didn’t ask you when I saw you at Heaven because that’s a really personal thing and I didn’t think it was appropriate for me to ask you that, especially in a club….

Do you mind if I ask you if you have had a test since? Because I don’t know when I contracted HIV and we fucked bb. And I kind of really hope that I didn’t put you at risk but I don’t know.

Btw this is incredibly hard for me. I haven’t actually had to have this conversation with anyone until now.

Marco: I have since and you don’t have to worry. 

It is a hard thing for sure but nothing you can take responsibility for. It’s a choice both parties make and in that scenario choices may be skewed

But that’s why you are fighting to put preventative measures in place – like PrEP

Greg Owen: Oh god! Ok….I actually felt really sick asking that question. I still feel a little sick

Marco: Really you cannot take that onus upon yourself. I was of sound mind and choice

Greg Owen: I know

Marco: Maybe less sound mind but definitely choice

Greg Owen: Lol. Ok thank you. I just panicked. I could see a chain of upset linking straight to Chris and I didn’t like the concept of that. But I’m glad it is not the case

Marco: It also isn’t a difficult chain to connect. You weren’t good at board games were you

Greg Owen: Lol. Fuck off

Marco: Hehe

Greg Owen: I‘m ‘bored’ of this game you mouthy fucker

So I was relived. But after an hour, when my anxiety had settled down a bit, something about that last set of messages was niggling me….so I read them back…..Then shit got REAL…..

Greg Owen: Btw – I just read your messages back and I didn’t realise that you didn’t tell me you were negative. Just that ‘I don’t have to worry’ I presumed that meant negative. You don’t need to tell me either way. It’s not my business but I do want you to know that if you are positive you don’t have to worry that I’m going to think ‘you gave it to me’ no one ‘gave’ me HIV – ‘I’ got it – I take full responsibility for that

Just wanted you to know that too xxxxxx

Marco: I did check and yes I am positive. It’s something I’ve been trying to deal with and have mentioned it to Chris

I would appreciate if others didn’t know until I’m ready I guess to accept and share

Greg Owen: Ok. That’s cool. Thank you for telling me. I NEVER discuss anyone else’s status

Marco: Hehe I’m sure 🙂

Greg Owen: It kind of goes with the territory. I need to adhere to good practices

You do it your way. YOU are the only person you need to worry about in regards to this

Marco: I had wanted to talk about it but the most important thing for now is baby steps

Greg Owen: It’s yours to own xxxxx

Marco: Thank you xXx

And you are a great guy. And I Admire what you are doing – That stays on here though, never to be repeated! LOL. I’m not going to start being nice to you

Greg Owen: Yes….everyone’s journey is different and no one does it ‘wrong’

Right for you is right for you

I’m actually really really glad you told me

Did you get tested after you found out about me?

Marco: No before. I had been acting a bit recklessly

Greg Owen: Well, we both had.

You on meds yet?

Marco: It’s quite common these days. Yes – I am on meds

Greg Owen: Speak for yourself – I’m not common! 🙂

Marco: Haha it’s just second nature for you. It’s best to start meds as early as possible

Greg Owen: What meds you on?

You know what, I haven’t tried to figure out the who and when

To me – it really doesn’t matter

It’s a waste of my energy

Marco: Me neither, no benefit really

Ritonavir, Truvada and Prezista

Greg Owen: It’s kinda a bit nuts cus only 1 person has cum in my ass since I tested neg last Easter. And I been 60-70 % top since too

Marco: Most likely that but not necessarily

Greg Owen: Just goes to show – you can’t always box clever

Precum has the Virus so it can be that too

It’s been weird that we bump into each other again

Marco: It really is. I don’t classify that day as a random chill out or sex party

Greg Owen: I’m sure life makes people collide for a reason

Marco: I believe that too! – I did enjoy it. Had a good time and enjoyed connecting, talking, etc

Greg Owen: Wow – so we were thinking the same thing

I’m gonna square too so this is out of the way…I was kinda shocked to see you a few weeks ago… you threw me

Marco: Why’s that?

Greg Owen: Because there is only you and 1 other guy that I thought I should have got in touch with

Marco: It was hit and miss. I had palpitations the way there. Only went because I had my therapy session before hand and agreed I should check it out

Greg Owen: Palpitations why?

Marco: I was just very nervous

Greg Owen: Seeing me (HIV related) or attending that kind of ‘gay’ event?

Marco: Attending that kind of event but no I felt relaxed to see a familiar face

Greg Owen: This is gonna sound weird… We can’t really tell if our HIV was exchanged between you to me or me to you when we met…. IF AT ALL. Could easily have been other people.

But in the oddest way…if you exchanged it in my direction…I’m kind a little comforted to know that the exchange was from a person who’s actually kind of a decent guy

I say that cus I had a bit of a horrible situation/experience with a guy earlier this year and it makes me kind of a bit sad if it happened in that situation.

Btw – this is ONLY between you and I

I don’t share these thoughts with anyone else

Marco: Of course…I confided in you too remember

You can be assured I hold what you say in utter confidence

What an interesting and weirdly sweet thing to say

I guess it’s part of 21st century ethics

There’s your story next time you write something

Greg Owen: I know…I trust you. I should probably explain. It’s more that I haven’t had this conversation before with anyone and it’s not thrown me or upset me. So it’s more a case that I think this is the most personal conversation I’ve had about my HIV. I don’t think I could share/write about how this conversation just played out

There are little bits of me and the HIV thing that I want to keep.

I mean it’s heartwarming to know that we have been able to have this conversation without any fear or anger. And I truly appreciate that x

Wow – I didn’t read your message until now

That’s a little freaky that I was typing about not being able to write about this as you suggested I should lol

Marco: Of course. I understand that you are sharing and want to be there for others. But there’s an element of personal journey to it. As opposed to just personalised

I appreciate this too x

It is a bit freaky we just had the same but different thought! 🙂

Greg Owen: I think you might be right (for once) maybe when I process how I’m feeling right now it would be worth sharing this story. It is so worth sharing. I need to let it sit with me for a bit. Xx

Marco: X

Greg Owen: I honestly have to say – this has been the strangest 24-36 hours

The amount of coincidence is ridiculous

Marco: Hehe what else did you do? WHO did you do?

Greg Owen: Lol. Shut up. You know what I mean – This conversation NEVER would have happened if you hadn’t been seeing Chris

Marco: Very true

Greg Owen: So out of a lot of panic and anxiety came a nice thing. Cus we just talked and were honest.

Marco and I wrapped up our conversation and then I was suddenly really emotional…..

Greg Owen: Ok…I’m not sure why. Genuinely don’t know why but our conversation just made me cry – properly like floods (about me) for the first time since I found out that I had HIV. I’m pretty sure this is a healthy release but very unexpected and I feel really really weird right now. Totally not sure if I should be sharing this with you either but as it was our chat that caused this reaction I thought would. I’m OK just a little overcome. I guess I should thank you.

Marco: That’s sweet and I appreciate you sharing that. No need to thank. It’s being able to share that makes us understand and deal with things

Greg Owen: I’ve stopped crying now!!! Lol. Thank god

I only cried for half an hour

But that was enough

Marco: It Sounds like a healthy release and it is lovely to be a part of. I wasn’t there physically but the communication and bonding are the same nonetheless. 🙂 Aww x

Greg Owen: It wasn’t so lovely for me today lol

It was a bit traumatic

But I am glad it’s out and done now

END OF CONVERSATION

I think the reason I was so emotional that night after our conversation was because Marco released a few of my internalised fears. I could have infected him…or he could have infected me or our HIV could have come from another situation. We really don’t know but that doesn’t change what we DO know…..

We both DO know that we aren’t angry people. We’re not gonna hate on each other.

Instead, we are most likely going to build on what looks like the start of a healthy friendship. Having already established respect, understanding, support and most importantly the liberation and unburdening that comes from being honest….nothing more – Just honest.

I can rest easy now knowing that my friend Chris is not at any risk from my HIV through Marco.

But above all, and this is as honest as I have ever been. I have had a constant niggling anxiety since I was diagnosed. That one day me being cool with being HIV positive would pass and that I’d be filled with some malignant hidden anger that was lurking in the shadows. I was truly petrified of becoming that person. Thanks to the chat I had with Marco – who may or may not have been the exchange point for my HIV…the fact that I didn’t have it in me to be angry with him. That I just wanted us both to be cool, released that horrible anxiety that I have been carrying around and afraid to admit for the last couple of months. I cried a whole lot that night and it felt really good and I feel like I put down a bit of baggage that I hadn’t realised was so heavy.

Thank you Marco and thank you Chris.

Continue reading “DO YOU KNOW”

Get free P(r)EP on the NHS – NOW

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You can get Truvada to use as PrEP for free on the NHS – NOW. Here’s how…

There IS actually a way to get PrEP for free on the NHS. It means working the system! And being a little bit dishonest. But if a little white lie is going to get you some free drugs to keep you HIV negative – is it forgivable? This process is called ‘clinic hopping’ more specifically ‘clinic hopping’ for PEP. And claiming a false risk of exposure to HIV

PEP is 4 weeks of treatment that is offered free if you have been at risk or exposed to HIV in the last 72 hours. They will test you for HIV at your appointment and do all the base line liver and kidney tests etc. Some sexual health clinics will give you the whole month of pills straight away at your first appointment. Others will give you 1 week of treatment and then you have to return for a check up at the end of that week and be given your remaining 3 weeks of PEP. So the system is simple. PEP consists of 1 Truvada and 1 Raltegravir pill in the morning and 1 more Raltegravir pill in the evening. So if you do the math and you are scamming the system for 3 pills a day and only taking 1…you are wasting 2/3 of what it costs the NHS to provide that. PrEP guys only need/want the 1 Truvada daily. So you can get PrEP on the NHS but you have to work them by getting them to give you PEP. This ‘clinic hopping’ is already a thing and is already happening in London (a lot) and with the rise of PrEP awareness and the knowledge of this method of accessing it…it will happen a lot more, at a lot of wasted expense to the NHS….Surely someone in the NHS can see this coming and behave proactively NOW to prevent this waste of much needed funds instead of reactively once we’re another year down the line….with thousands of pounds being wasted.

I know of people who will spend 1 day going around 2-3 clinics or A&E departments collecting 3 month’s supply in one day because sexual health clinics here in the UK operate a ‘confidential stand alone service’ and don’t communicate data with each other or your GP without your permission. You can in effect be anonymous at each clinic as you don’t need to provide any ID or proof of address. So at 1 clinic you could be John Smith at another you could be Peter Pepper. Some of these ‘clinic hoppers’ take their PrEP pill every other day so 28 pills actually lasts them 2 months.

I asked a representative from a leading London sexual health clinic about ‘clinic hopping’…

Are you as a clinic aware that ‘clinic hopping’ for PrEP is happening in London?

NHS availability (or otherwise) of certain drugs regarding Hepatitis C (Harvoni/Sofosbuvir ) and HIV protection in the form of PrEP have created a climate of people sourcing their own medicines their own way or sometimes ‘scamming the system’. This is entirely understandable; even heartening that people are being inventive and proactive in their desire to protect themselves and partners from infection. However, it can be dangerous when done in the absence of medical supervision, and so cannot be condoned.

So if a guy managed to get his Truvada as PrEP through this method but had queries or concerns about taking PrEP or his HIV status, what support is there for him?

What we don’t want to happen is for people to be frightened to tell us that they are scamming the system; because even though we may sometimes be limited in the medicines we can prescribe for PrEP and HCV treatment, there is still very helpful advice that our staff are able to give people doing that. No one is going to get reprimanded or told off for telling us how they’re ‘scamming the system’ or how they are trying to stay HIV negative. If someone has a supply of PrEP (regardless of how/where they sourced it) and they need advice then we can give that very practical, medical and lifestyle advice to people wishing to stay negative. We don’t want people to avoid us or omit truths because they are frightened they are going to get in trouble. We are aware there is a climate of  scamming or ‘clinic hopping’ for medicines and – though we can’t condone it – we encourage people – guilt free to come and tell us what they are doing to try to stay HIV negative. The desire to protect ourselves and our partners from infection,  is always an admirable and commendable one; full disclosure, can help us to help you.

Continue reading “Get free P(r)EP on the NHS – NOW”