PrEP 2015: a very blue year

blue year

2015 has been quite a year. A brilliant year of developments on PrEP (HIV prevention) and deconstructing HIV stigma.

It hasn’t been an easy year by any stretch of the imagination and I’ve had a few personal curve balls thrown in for good measure. But such is life.

I want to take a moment to look back on our progress particularly in the PrEP arena.

At the start of 2015 there was a considerable amount of noise being made in the US by Damon L Jacobs and his facebook crew of PrEPsters in the PrEP Facts:Rethinking HIV Prevention group. This family of HIV prevention enthusiasts, users and advocates is currently sitting at a substantial tally of 12,500 people. The group’s significance within and contribution to the PrEP community even caught the attention of WHO (World Health Organisation) this year.

damon

But here in the UK it didn’t seem like we were making that much noise at all. There were a few random mentions from scene magazines and the odd share of an article here and there. I shared and posted as much as I could find and it was being well received as a concept.

I felt reassured that PrEP would catch on here in the UK when it was made available. I was perhaps a little too naive in making that presumption at that point. In hindsight, it was being well received as a concept because it was nothing more than that.
A concept. Not a practice or an option that was available or likely to be available in the near future.

I know this now…but I didn’t know it back then. Discovering hostility towards PrEP was unexpected and came with a hefty emotional price tag for me.

My own PrEP journey was a very short lived one indeed! Late one Tuesday evening (11th Aug). I managed to get hold of 2 months of Truvada from a HIV positive friend who had changed his meds. I decided that I would document my experience, every sexual encounter, chill out, sex party and screen for STIs every month for 6 months and write my Truvada Diary.

The next morning I hopped on a bus to Dean Street Express to have a HIV test to confirm that I was HIV negative (last tested negative Easter 2014) I had written the opening section of my PrEP journey by the time I had arrived at the clinic. 20 minutes later I was diagnosed as HIV positive. The irony! So that put an end to my PrEP diary. Instead I began writing my diagnosis diaries – This is Me part 1, part 2 and part 3.

My public disclosure on social media and the subsequent publishing of my diaries raised my visibility and awareness of PrEP and the immediate necessity for it so much that I just couldn’t cope with the amount of enquiries that I would receive on Facebook, Twitter and email.

This is when the option of importing generic PrEP was brought to my attention and really took hold. After a few
discussions with my buddy Alex Craddock and meetings some knowledgeable friends, the idea for www.iwantPrEPnow.co.uk was born.

We were going to build a website with all of the info you needed on PrEP and with links to buy genuine and legitimate generic PrEP from trusted sellers. We knew the website would take us about 4-5 weeks to build in our free time so we set about that with immediate effect.

What I identified I could do in the interim between that point and our launch was to raise awareness and test the waters. I want to gauge exactly what the feeling towards PrEP was.

We would be making access to PrEP a reality and not just raising awareness of some unobtainable new HIV prevention concept.

The reaction was not what I expected and not what I wanted to deal with at that time in my life but there wasn’t much choice.

PrEP was being smacked down quite regularly and quite aggressively.

Here I was, a very newly diagnosed HIV positive gay guy being berated and attacked for pushing for PrEP.

It was a little heartbreaking.

Why couldn’t these people see the potential of PrEP?

Why were they so averse to the idea?

I realised I had to reconcile that within myself and find a way to relate and connect to these people. The solution presented itself quite clearly and promptly. Just be honest. Just tell your story.

No one wants to catch HIV. There is a tool that is almost 100% effective at protecting you from HIV.

I managed to get hold of it. But I was a few months too late. Just state the situation and leave it there.

It seemed to work.

I was also aware that people don’t like to read pieces of text. Especially on something they are not too interested in. So I went with some very simple, very basic images. I am no graphic designer! These memes were created on an app on my iPhone. And here they are…

226

It passed by without too much controversy. That wasn’t to last! Next up was a play on Apple’s incredibly irritating auto-correct of the work fuck to duck! If you use the word fuck as much as I do then this little text amend is DUCKING annoying…

014

Again, I thought this was palatable. It’s a blue duck – who can have an issue with that? Quite a few people it would seem! Instantly the cries sprang up of

“Are you saying we should abandon condoms?”  

“This is totally irresponsible and reckless of you”

“You are sending out the wrong message here Greg”

“What about other STIs. PrEP doesn’t protect you from those”

I wasn’t really prepared for that reaction and I hadn’t formulated a response. Little did I know that a few short months later I would be so sick and infuriated by that ‘other STIs’ question that I would have lost my patience and found the balls to write an article titled ‘Fuck other STIs’. But at that moment it shook me a little so I tried to dampen the argument with this.

016

It immediately silenced those critics. So we were learning and we were on to something. By introducing the word ‘extra’ into the positioning of PrEP we could get people to start thinking about PrEP itself and not what using it implied – ie abandoning condoms. I tested it out with the next image.

015

This one went down really well! The very same people who were busting my ass over the barebacking rubber duck were now on board and thanking me for behaving responsibly with a healthy and inclusive message. So I took it a step further.

009

Then I put PrEP in the tool kit.

008

It seemed too simple but it really was that straight forward. Use the word ‘extra’. Make PrEP an additional tool and position it with condoms – not instead of. People stopped trying to run me out of town! But again, I had a feeling that would be short lived. We hadn’t introduced the sexual element yet. So I ran with this.

smurf

As expected the pitch forks came out again.

What is it with people in the UK and the horror that sets in when something appears to be sexual? I’m still getting my head around that one.

But now the comments coming in were accusing me of trivialising safer sex by releasing the sexy Smurfs. In fact that couldn’t be further from the truth. PrEP is HIV safer sex. So is condomless sex with a HIV positive undetectable guy.

At that point I realised that I wasn’t ever going to be able to please everyone. So I stopped trying.

And that was liberating! For the sake of the objective at hand I decided to revert (temporarily) to inoffensive, non-sexual subject matter.

010

The lightbulb was safe and for some reason people liked it. It’s one of my least favorites. I had given up trying to predict what would and would not be received well! The watch was up next.

020

When this image went out on Twitter a good friend and colleague from a HIV charity tweeted me to say that he loved the image but that it was factually incorrect.

PrEP is not here as it is not accessible yet.

Little did he know that in a few weeks PrEP would be here and accessible through www.iwantprepnow.co.uk – admitedly not for free but it was here! The images were getting  a fair amount of attention now and I started getting requests. Here are a few of the requests.

017

I know this tag line is from Sesame Street but it kind of worked here.

024

Who knew gay men loved The Smurfs, The Muppets and Sesame Street?

023

And it was no surprise that the Diva went down well!

019

Then I changed the direction slightly as the reaction towards PrEP warmed.

022

This next image has the wrong tag line again – my mistake. ‘You Got a Friend in Me’ is from Toy Story. The song from Aladdin is ‘You Ain’t Never Had a Friend Like Me’. I didn’t think it was that big of a deal until I happened to catch Aladdin on television a few days ago and watched Genie and Aladdin in that number and in fact – you ain’t never had a friend like PrEP!

018

The set isn’t complete without drawing a little attention to slut shaming….

228

And realising that the way a person chooses to protect themselves from whatever is and always should be totally their choice and they should be fully supported in the choices they make for themselves.

021.JPG

Recently I have been able to release a few images that need no disclaimers or pacifiers.

It’s nice to see David Cameron get involved with PrEP…

pig

And push it real good…

salt

The website www.iwantPrEPnow.co.uk has even been discussed at BHIVA by Dr Mags Portman.

bhiva

At BHIVA’s European HIV Hepatitis Co-infection (EHHC) Conference by Dr Andrew Hill.

co

And most recently Alex Craddock (iwantPrEPnow co-founder) featured on Channel 4 News alongside our PrEP siblings and their site PrEPster

In my opinion this year has seen the UK MSM community stop slut shaming and challenging the benefits of PrEP. In the summer most of my conversations about PrEP were loaded with shaming, ridicule, dismissiveness, divisive statements, fear, resistance and a lack of knowledge.

Today with just 2 weeks left of 2015 I can tell you that the amount of interaction and conversations I have with people about PrEP has more than doubled – perhaps even tripled.

Now those conversations are predominantly from people wanting PrEP now with well constructed questions on the finer details and specifics of being on PrEP or preparing to start PrEP.

This is amazing. We have turned a corner and the road ahead looks promising. 2016 is going to be a very exciting year. 

Merry Christmas and a happy new year!

Continue reading “PrEP 2015: a very blue year”

PrEP ain’t for you…or is it?

 

12358449_10153757097427052_1410953123_n

Jake: I just wanted to ask a PrEP question.

Greg Owen: www.iwantprepnow.co.uk If it’s not on there I’ve failed. lol

Jake: You didn’t fail but I want an answer in slightly more detail. Event based PrEP. Say someone like me who never has unprotected sex… and I can’t remember the last time I slept with someone who didn’t know their qualified status… I don’t want or need to take PrEP. But say I wanted to try unprotected sex with my boyfriend or someone else on one occasion… so taking PrEP just when I needed it. Is this safe? Is it enough to stay neg. I just read all the options… and you say that taking a pill a day is the safest.

Greg Owen: I have a burden of responsibility to actively promote the safest – ie large study (PROUD) tried and tested daily method. That is why it is positioned like that on the site. The EBD (event based dosing) system has been trialled in France. It is called IPERGAY and yes – it is safe. Official figures suggest 86% reduced risk of HIV infection. However there are variables with this method and so therefore requires a conversation like this so that the PrEP user can be educated properly.

I don’t have capacity to do that with everyone and I really would want to because this method opens up the possibility of risks. I hate the word risk used alongside the word PrEP. The variables are the time between 1st dosing and actual sexual interaction (because studies and tests have found that there is not sufficient HIV protection in the anal tissue until about 8 hours after the 1st dose of PrEP) and you also need to address and fully understand doseage etc and by that I mean the number of pills taken, when and duration. And some people say that the study was based on the minimum amount of time and PrEP required for protection so you could expand on your protection by increasing the time between the 1st dose and sex and the length of time you dose after the sex.

The problem I have with this is that info gets relayed from gay to gay and gets muddled in the middle – a bit like chinese whispers. That makes me uncomfortable when the thing being jeopardised is a person’s HIV negative status.

Jake: I’ll refer other gays to your website – I promise.

Greg Owen: I don’t go into these details on the IWPN site for that reason. At the point when it becomes technical and requires someone of authority to advise on this method we direct our users to their local sexual health clinic to discuss it face to face with a clinician. You are a friend , someone I know personally which is why I am discussing it now.

Back to the point… with event based dosing you don’t have that 100% peace of mind that comes with daily PrEP. So in a way you are running the HIV gauntlet again and that negates one of the key benefits of PrEP. But EBD/IPERGAY is a tried and tested method and the whole point of what I do is to share information and although I don’t personally feel comfortable promoting this method of using PrEP, it still offers protection (up to 86% if used properly) that might very well work for someone and so I put it out there.

I guess it boils down to this – any HIV protection is better than none.

But for you Jake – I don’t think PrEP is perhaps the best thing. It’s people who are already involving themselves in high risk behaviour that need to think about it imminently.

If you like using a condom every time you have sex – stick with it. It’s working for you. 

Don’t muddle it. You have good condom adherence. I’m happy that is the case with you. I would be conflicted in advocating PrEP for you if it were to potentially diminsh your condom use.

Jake: Of course. That’s how I feel. It’s not an issue for me. But I’ve never had unprotected sex with my boyfriend. Just thought it might be nice to try. We both think that we’re negative and of course we both need to get tested. But it would be reassuring for both of us if we also did PrEP.

Greg Owen: I disagree. If that really is the case then you don’t need PrEP. Unless you – or you suspect your boyfriend is having BB sex and not being honest about it. If you aren’t and you trust he isn’t…get tested (full screening) and go for it. You really need to weigh up the landscape on a person (or couple) specific basis. If you don’t trust him and don’t wanna discuss that within your relationship there is another option. You can take PrEP on an EBD/IPERGAY system and just don’t tell him.

PrEP empowers the individual.

Jake: He’s not having BB sex. And he doesn’t lie to me. There’s absolutely no reason for him to lie because we’re totally open. That’s the sole purpose of having an open relationship, so that we don’t have to tell lies.

Greg Owen: If that’s how it works in your open relationship I’m happy for you. That is not the way it works in all open relationships.

Jake: Really?

Greg Owen: Yes – from my personal experience and from what I have ascertained through discussing sex and sexual behaviour with many different types of guys in various different situations.

Jake: Why not?

Greg Owen: I’m generalising now but here we go –

Gay men LIE (some not all)
Gay men take risks (most not all)
Gay men do not tell their boyfriends any of the above (some not all)

Also – I can’t imagine you would be too happy informing your boyfriend that you have had sex with me – a HIV positive guy. Protected or not, undetectable or not. You might not feel 100% comfortable telling him this and I understand that.

Jake: But that’s the structure of my relationship. We said we didn’t want any lies or games. So we’re open from the outset and we’re totally honest. It really works. I don’t understand being open and then lying about being open. Makes no sense.

Greg Owen: I agree Jake but you can only be accountable for yourself. You cannot control or dictate what another person does. Regardless if you have made an agreement or not. If your relationship is structured and works like that I am happy for you both. I’m just saying that some people find certain topics difficult to discuss with their partner. That’s why I mentioned the HIV thing as an example. You in effect removed his choice of introducing HIV into his sex life.

Jake: I totally don’t understand what you’ve just said to me. Introducing HIV to our relationship?

Greg Owen: My point is that some guys wouldn’t sleep with a positive guy and that is totally cool with me. If your boyfriend wouldn’t sleep with a positive guy – if that is just one of his sexual boundries and then you sleep with me as an extra in your open relationship, in effect you introduced HIV or more specifically a HIV positive sexual partner into the mix and I don’t think that’s 100% fair. You took a little bit of his choice away. Of course we are speaking hypothetically here as I don’t know your boyfriend or his opinions or prefernces on HIV positive sexual partners. But I find that when it comes to HIV – even though it’s ME that is positive and not you or your boyfriend, we all still need to mindful and considerate towards each other and that extends to how your boyfriend would feel about you having sex with a positive guy ie me. Regardless if you were at risk or not – which you weren’t because I’m undetectable and we wore condoms. I’m just saying some guys dont like it. And that’s not some strange manifestation of internalised HIV shame on my part. I have none. It’s just being considerate towards other people’s feelings. That’s all. I’m just trying to illustrate a point. Sometimes what we get up to in our sex lives isn’t always easy to discuss with one another for a lot of very understandable reasons.

Jake: Well, as I demonstrated. I’m not like that. But I might be introducing HIV every single time I have sex with another man. If I
sleep with a guy who doesn’t know his status though… which is more dangerous.

Greg Owen: Bingo! But an undiagnosed guy is not stigmatised. Even though 80% of new HIV infections come from undiagnosed ‘negative’ guys. You are preaching to the converted.

Let’s put it this way… when I was HIV negative I happily slept with HIV positive guys that I knew were undetectable and who I knew well enough to know that they took their meds regularly and I was even aware enough to try not to put myself in that position on the Tuesday after a Bank Holiday weekend when a HIV positive guy might have been out partying and high since Friday and not taken his meds for 3-4 days therefore resulting in a viral spike above the (generally accepted) 400 mark which starts to become HIV infectious again. I KNEW all of this stuff and I played by those rules ‘most’ of the time but I also slept with other ‘negative’ guys who were ‘definitely sure’ they were negative. I knew the risks and I took them. I’ve told you I can’t pin down the point when I contracted HIV but what I can categorically tell you is this….

I did not get HIV from a HIV positive guy…. I got HIV from a HIV negative guy!

Of course the exchange was from a person that had the virus in their system and technically was HIV positive but there is no doubt in my mind that he was still under the illusion that he was HIV negative.

So I get you. xx

Continue reading “PrEP ain’t for you…or is it?”

Can a ChemSex fuck ever be a sober buddy?

sober buddy

Can a ChemSex fuck ever be a sober buddy?

Some of you might remember Marco from Do You Know. He seems to keep popping up here and there and we had this conversation. This is what happens when you start to talk about sex and drugs and insecurities and even your HIV meds. You find support and love and a little too much sass at times! Say hello to Marco AGAIN!

Greg Owen: When do you get back from Italy?

Marco: I’m back, I landed an hour ago!

Greg Owen: How was your trip? And your family?

Marco: It was great thanks. And the family are all well and happy

Greg Owen: Yesterday I was in a room full of European and International sexual health experts – lol. Was very surreal to be addressing a room like that. Oh and with art imitating life….You pop up AGAIN ffs

“Many people navigate the ChemSex environment very well and enjoy it. They have good and pleasant experiences. But many don’t. I personally enjoyed my time on that scene. There were dark and destructive times but there were great times too. In fact, some of the people I met at chill outs and connected with while high and naked have subsequently popped up in my life recently in unexpected situations – sober and clothed! I have really enjoyed reconnecting with theses guys again. One person that springs to mind is Marco from my Do You Know piece.”

Greg Owen: Marco you are like Groundhog fucking gay….

Marco: Hahaha. Is that what you said in that room full of Health care people?

Greg Owen: No! Not in the room dumbass, they don’t need to know about my ChemSex past life in that kinda detail! It’s from my blog ‘ChemSex & Me’

Marco: Yeah I meant there , I thought you said that at the event yesterday!

Greg Owen: Jesus Christ – gimme some credit

Marco: That’s asking a lot

Greg Owen: “I’m worth it”

Marco: Haha. Flick that hair…Oh wait you can’t

Greg Owen
thor

Greg Owen: You did not just make a thinning hair joke! Mofo

Marco: Hair loss is no joke – For those without

Greg Owen: If I get too low on hair I could make a weave or 5 out of your body hair….You got plenty to spare

Marco: Please…mine is fitting. And looks good

Greg Owen: ‘Fitting’??? Yes, perhaps – like a fitted carpet! I found your Grindr pics…lol

sei

Marco: Haha at least I look like a man and not the Major of the Munchkin City

Greg Owen: Man beast! Bitch please – you made no complaints! #justsayin lol

Marco: Minimal impact

Greg Owen: hahaha! Well in hindsight I think we can agree that that may not have been the case lol and you can’t backtrack now. That moment played out – you can’t try changing the facts…Leprechaun lover!
xx

Marco: Haha as long as you admit you’re a leprechaun

Greg Owen: haha. Thats Irish luck for you

Marco: Hehe you have a loose definition of luck

Greg Owen: You have a loose definition of ass and morals but hey ho or hey hoe

Marco: That’s why you met that criteria

Greg Owen: hahahhahaha – oh god…We are never going to graduate to ‘kind and sweet friends’ are we???? This is the dynamic
lol

Marco: It’s established

Greg Owen: Indeed- and cemented. You are quite relentless. I would have worn most others down by now

Marco: Hehehe that made me laugh

Greg Owen: Good! It was half a joke and half serious lol But I like a challenge….I WILL break you eventually

Marco: Many have tried, all have failed

Greg Owen: Many and all ARE NOT ME…

Marco: You’re hardly the upper quartile. I’ve met many a great mind

Greg Owen: Its not my mind you need concern yourself with – my tongue is steely

Marco: I guess there are other bits you need to compensate for

Greg Owen: haha. Not in the slightest. I’m happy with my lot and my skills exceed any physical confines….

Marco: You’re not the first bitchy munchkin I’ve come across.

Greg Owen: I don’t believe you came across nor in me….I recall….very well. You skulked home – tired. Lightweight

Marco: You’d have been the 8th dwarf if you weren’t jealous of Snow White

Greg: Hahahahaha. That’s hilarious

Marco: 😉

Greg Owen: Thank you for that – I actually laughed out loud
Ok – I need to get out of bed and do something productive today

Marco: Oh dear. It’s noon. That’s a good idea

Greg Owen: I changed my meds on Wed (last week) have had a little bit of a bumpy ride. But nothing serious

Marco: Aww. Physical or mental? Actually mental may be hard to tell

Greg Owen: Physical but because I’ve not been ill or had any side effects previously it affected me a little bit emotionally last night. Mainly just because I’m tired. It was nausea at first but that went after about 3-4 days. But then the tiredness!!!!!! Bouts of fatigue are horrible and so out of the norm for me. But I feel ok today for the moment anyway

Marco: How long is it expected to last?

Greg Owen: It can last up to a month but I progressed through the nausea in a matter of days not weeks so I’m hoping it will be the same with the fatigue. A lot of guys I have spoke to who are also on Triumeq said about 2 weeks then they were back to normal….so I got a week left.

Marco: Hopefully. Try taking B100. Plus vitamin D tablets

Greg Owen: Thanks. Someone else said that too. How come you went home to visit the family anyway?

Marco: It was my nephew’s christening and my best friend who lives in Australia was there this week too so I wanted to catch up with him

Greg Owen: Wicked – so you had a buddy and it wasn’t all family

Marco: Yeah – I haven’t seen my best friend in 2 years so it was so good to go out and party and go a bit crazy with him

Greg Owen: That’s sweet. And how is work?

Marco: Going really well. I got promoted to group project manager and loads of exciting stuff coming up

Greg Owen: Good – Im pleased for you
x

Marco: Thank you. Great holiday though. Went out a bit too much I think but really fun

Greg Owen: It’s really important to do that. I’ve been making friends with my sex life again….at last lol

Marco: Hehe how so?

Greg Owen: I just felt a bit better in my skin now since I got my ass back in the gym and time to trust the science – undetectable ‘n all
lol. Nah…seriously I just thought it was about time. Had some lovely experiences and sober sex. And the guys were too hot to pass by

Marco: Haha that’s good

Greg Owen: It was good

Marco: Were you only have sex on drugs before now?

Greg Owen: Yes, only chemsex from 2013 til this Oct and since Oct only sober and 1 on 1. I prefer it

Marco: Wow that’s great. Well done

Greg Owen: It wasn’t totally intentional

Marco: How hard did you find the transition?

Greg Owen: I have too much anxiety to be on Grindr with this level of visibility. Not hard at all really

Marco: The old fashioned way is better

Greg Owen: It’s a re-learning of previous pleasures for sure but purer pleasures and I’d like a relationship again at some point. Sober sex has to be a part of that. So I guess it was sex in training for a boyfriend!

Marco: Haha – like being in training for the sexolympics

Greg Owen: ChemSex-ers Anonymous lol. 12 steps instead of 12 guys at once haha

Marco: Haha

Greg Owen: It’s an enjoyable programme hehe

Marco: I can imagine 🙂

Greg Owen: Nice to know I got some skills in myself and not just in a Jiffy bag. Slightly daunting at first but worth the plunge

Marco: The sober sex you mean?

Greg Owen: Yes – everyone can fuck like a porn star on chems…
good to know I can bring the filth sober too

Marco: Hahaha

Continue reading “Can a ChemSex fuck ever be a sober buddy?”

The Year of No Fear – HIV today

tyonf

What does it mean to be HIV positive today?  

I was diagnosed on 12 August this year and I was lucky. I was diagnosed in what I call ‘the year of no fear’.

Thanks to the PARTNER study and the PROUD study our HIV status, be it positive or negative has less potential to polarize and divide us. The PARTNER study showed that condoms were no longer needed to prevent HIV transmission so long as the HIV positive person had an undetectable viral load on HIV treatment (ART). The PROUD study showed that HIV negative men taking daily PrEP (Pre-Exposure Prophylaxis) were protected against HIV transmission, again even without condoms. For the first time in 30 years we truly have the opportunity to live and thrive as HIV equals.

So I was diagnosed as HIV positive and publicly disclosed my status immediately because I felt empowered by this knowledge and fearless because of these studies. Sure, there would be social hurdles but that’s the amazing part – I’m not a Scientist or a Doctor. They have done their bit by affording me these comforts. Now it’s my turn to do my bit. I’m just an everyday person with no clinical background but what I can do is change people and their preconceptions. I can – we all can.

But the opportunities expand well beyond just deconstructing stigma and establishing equality. We now also have the chance to start winning the fight against HIV and AIDS. It’s time to look to San Francisco for the beacon of hope and pioneering example.

San Francisco is the only city that have stabilised their number of new HIV infections. In the last 3 years they have delivered a 30% reduction. The reasons why are simple. TasP (Treatment as Prevention) where anyone diagnosed with HIV is on effective ART (Antiretroviral Therapy) and are therefore undetectable and non-infectious, combined with PrEP for HIV negative people. 

Always seemingly a step ahead, San Francisco embarked on their RAPID initiative, involving 39 men from July 2014 to December 2014, which implemented a process of treatment at point of diagnosis. This in effect speeded up the process of beginning ART (Antiretroviral Therapy), preventing people from falling out of the system by collapsing some of the steps of the care continuum. Thus reducing the window of onward transmission from infectious newly diagnosed patients.

In the UK the clinical benefits of earlier treatment were shown in an international study called START. It is undoubtedly one of the most important HIV studies of the last decade. It was designed to look at the benefits and risks of early HIV treatment (ART). The results were both exciting and reassuring for people living with HIV today. The following is from HIV i-Base.

Main findings include:

  • HIV treatment was safe for people starting HIV meds with a high CD4 count. Many people in START had a CD4 count above 800.
  • Early treatment led to fewer serious AIDS-related illnesses, even at high CD4 counts.
  • The biggest [negative/general health] impact from early treatment was expected to be on illnesses like heart, liver and kidney disease and some non-AIDS cancers. The opposite was true in that early ART reduced HIV-related illnesses. This is big news.
  • The results were similar in both low- and high-income countries. This should result in making HIV treatment more available in all countries.

Secondly, the results show that benefits of treatment and prevention overlap. Other studies have proven that treatment dramatically reduces HIV transmission. Now people using treatment as prevention (TasP) will know there are direct benefits for their own personal health as well as that of the community.

Ultimately, it’s not about us and our generation. I have two 5 year old nephews and I would love to think that by the time they are in their 20’s that we will have managed to reduce our number of new HIV infections in the UK to such a low level that neither of them need ever worry about contracting HIV as I have. It is for them and our children that we need to take responsibility and action now!

We need to manage and reduce this country’s alarming and unacceptably high number of new HIV infections. Let us put the focus back on the AIDS crisis. There is still an AIDS crisis. Not in this country, here in the UK we have a ‘new HIV infections’ issue – not an AIDS crisis. But in sub-Saharan Africa and even as close by as Eastern Europe and Russia they still have an AIDS crisis.

Our brothers and sisters before us did not die of AIDS so that we could become complacent with HIV and allow ourselves to be immersed in AIDS apathy. It started with them, it can end with us. We have the tools to stop and end HIV and AIDS. We need to use them. 

We can’t allow our privileges to diminish our responsibilities in this global healthcare issue.

Continue reading “The Year of No Fear – HIV today”

AIDS SHITS AND GIGGLES

Let’s Talk About Gay Sex and Drugs – ALIENS

Act Up London are an AIDS activist group billed on their facebook page as a diverse, non-partisan group of individuals united in anger and committed to direct action to end the HIV pandemic. Until recently AIDS activism was an ‘alien’ concept to me. However far from being the ‘angry’ bunch of individuals that I was expecting to encounter at this group, they were warm, open, welcoming and fun if not regularly fucking hilarious!

Last Tuesday afternoon on a mere 2 hours sleep after working all night at Popcorn at Heaven, I wearily made my way to Angel for the Act Up summer fair at the Positively UK offices. To say that I was less than my bouncy, usual self is an understatement. I was pro-actively 30 mins early for the 3pm kick off. As I posted my obligatory check in and promotional post on facebook, Dan Glass replied to the thread to let me know he was going to be fashionably late by about 20 mins so it was looking like the day was going to be a longer, more draining ball buster than it was already feeling like.

My brother had arranged to join the event after work to catch up with me and get a glimpse into what his ‘Social Outlier’ big bro actually got up to at these intriguingly ‘alien’ aids shin digs!

Towards the end of the meeting, after my brother a few other latecomers arrived and joined us, Dan Glass decided to throw another one of his impromptu icebreaker activities of name and statement rounds. The theme of this round was “state your name and something that no one else here knows about you”…

This is where hilarity broke out! I honestly almost pissed myself laughing…leading me seamlessly on to shit…Yes, shit. Tom our wonderfully fabulous cis-male joker proceeded to tell a story of when he found himself in KFC in Hackney – bursting for a poo that he had been in labour with all day. He deposited said poo in the KFC toilets, which he then tried to flush away. However the gods of the porcelain bowl were against him and the poo refused to go! So he flushed again further filling the blocked loo causing the monster poo to float up and over the toilet rim and land firmly at this feet – which he now takes the time to point out were dressed in 6 inch stilettos, below his ra-ra skirt! In a panic he decided to take action and leave the KFC, however as he opened the door the poo decided that it wasn’t ready to say goodbye to Tom just yet and surfed out of the loo and onto the main floor of the restaurant alongside six and a half foot Tom in heels and a ra-ra skirt!

Tom’s shit story seemed to have totally broken the ice beyond all expectation and we quickly arrived at sexual tales of the most graphic and amusing nature.

We soon arrived at my brother’s moment to share his name and chosen story, I was starting to feel nervous and uncomfortable! And I think he knew…He begins….

“Hi everybody, I’m Brendan and I’m Greg’s brother. And eh…I’m straight….And…”

He was then greeted with the not too unexpected heckles of “Ah ha!?” “Uh Hum!?” “Yeah! OK GUUUURL”

He continued “ Yeah so….I’m not really sure how sexual to go here…I have some right WRONG stories…but I dunno…”

I think the chorus then pitched in ad-libs to the effect of “go on straight boy…get nasty” and “wrong is always right gurl”

He continued…”Eh? Greg?”

I then shared a story about my brother that I maybe shouldn’t have but that was right for the moment and that he was gracious and sporting enough to allow me to tell. Bless him, I loved him for jumping in at the deep end so unconditionally and I was so proud of him holding his own and shining in a world so alien to him.

So as to keep with the tone and the theme of unapologetic sexual confessions…I admitted or bragged actually, to the group that I can suck my own dick… Which luckily I didn’t discover I could do until about 2 years ago…Otherwise I would never have got an education, got a job or left the fucking house! Mind you, though no one in THAT particular room knew this self-sucking selling point, a good proportion of Grindr and South London’s sex party fraternity DO!

Stepping into an arena that is alien and embracing people that may seem alien to us can reward us with the greatest gifts sometimes. Regardless of what gender we are, what colour, what religion, what sexual orientation or what status. Alien to each other or not, we are all joined by common ground by sex and sexuality. The ability to love and the need for love and of course the joy of being able to laugh with and at each other.

AIDS IS NOT ALIEN!

Thank you

*The audience then applauded

One more thing guys…I asked Pat Cash for 20 seconds more to speak with you after I finished my piece. He very kindly allowed me that extra time. That’s like gold dust at these events so I’ll crack on. I just wanted to take a moment to point out why groups like Act Up and events like  this are so import for us right now.

I had managed to source some Truvada to use as Prep that I was due to start taking this weekend. Now I’m well enough clued up on Prep to know that before you start taking it you need to make sure you are definitely HIV negative so you don’t cause yourself problems with creating drug resistance issues by taking Truvada if you are positive and don’t know it. So off I went to Dean Street to take my test to confirm I was negative so I could start taking the meds that would KEEP me negative. 20 mins after arriving at the clinic yesterday – I was diagnosed as HIV positive. The irony is not lost on me. This is why us coming together and sharing and making changes in our world is so important. Prep needs to be made available to everyone and now!!! So someone else doesn’t find themselves in my shoes.

I wore this vest for a reason…

hiv front HIV back

Last week this vest was ironic – this week it’s uniform.

STAND TOGETHER – MAKE A DIFFERENCE

Thank you

Continue reading “AIDS SHITS AND GIGGLES”