PrEP4love: rebuilding a community

PrEP4love

(Image credit and campaign link: Chicago PrEP Working Group  www.prep4love.com )

Something has become increasing and beautifully apparent to me over the last 6 months and especially the last week. We have shifted a gear. For a while we lost a sense of our community, our brotherhood, sisterhood, sibling-hood. Regardless how you define our community, what can’t be argued is that we suffered for a while. We kind of lost ourselves and each other.

The reasons why aren’t important but the impact and implications are. I think we became unkind to each other and to ourselves. We are seeing the real-life manifestations of that right now. We are in a painful and dangerous chemsex culture. Our number of new HIV infections are rising. Year after year.

I think we lost a little bit of hope.

But there is new hope, fresh passion and most importantly LOVE. We’ve started to find our way back now. And I have to tell you a part of the catalyst for this inspiring and encouraging shift is PrEP. My experience is this…

WE DIDN’T HAVE MUCH OF A COMMUNITY. We found one online through social media (a new and incredibly powerful new medium for community to thrive) then we actually managed to take that community and those friendships off-line and into real life. What was hugely important was that Pat Cash and David Stuart offered some of us a safe and loving space in the form of their monthly Let’s Talk About Gay Sex and Drugs.

I will tell you how this has all played out for me… when I was diagnosed as HIV positive I refused to suffer in a world I didn’t like and to do so in silence. Instead I saw that PrEP would have as much benefit for me personally as it would for everyone else negative and positive.

What PrEP does is remove the fear.

And without fear stigma starves. And that’s what is starting to happen. Investing in PrEP and my community totally helped me to accept my HIV positive status knowing that it wasn’t gonna kill any bit of me, who, what or how I am.

Today I bumped into 2 PrEP buddies in Brixton. There were lots of warm hugs, plenty of banter and excited and animated talk about PrEP and HIV and our other mates. I was a little overcome. I suddenly realised that I am surrounded by countless gorgeous gay men, not afraid to reach out to each other, not afraid to offer support, not afraid to ask if you are OK, not afraid to say they are scared or in love or having great sex.

This is the kind of amazing sibling love and community spirit that I was surround by in my teenage years. This is what I sorely missed. And I actually cried today. Because this is the community love, respect and sexiness that has returned.

We are not alone.

We are family and we look after our own. But gay men are also great at integrating these days and they have a fair bit of fight and love to extend that approach to everyone. #PrEP4love #whereisPrEP

This blog has been verified by Rise: R245f8c54c83dcbdd55e17e5812b052e2

Continue reading “PrEP4love: rebuilding a community”

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PrEP 2015: a very blue year

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2015 has been quite a year. A brilliant year of developments on PrEP (HIV prevention) and deconstructing HIV stigma.

It hasn’t been an easy year by any stretch of the imagination and I’ve had a few personal curve balls thrown in for good measure. But such is life.

I want to take a moment to look back on our progress particularly in the PrEP arena.

At the start of 2015 there was a considerable amount of noise being made in the US by Damon L Jacobs and his facebook crew of PrEPsters in the PrEP Facts:Rethinking HIV Prevention group. This family of HIV prevention enthusiasts, users and advocates is currently sitting at a substantial tally of 12,500 people. The group’s significance within and contribution to the PrEP community even caught the attention of WHO (World Health Organisation) this year.

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But here in the UK it didn’t seem like we were making that much noise at all. There were a few random mentions from scene magazines and the odd share of an article here and there. I shared and posted as much as I could find and it was being well received as a concept.

I felt reassured that PrEP would catch on here in the UK when it was made available. I was perhaps a little too naive in making that presumption at that point. In hindsight, it was being well received as a concept because it was nothing more than that.
A concept. Not a practice or an option that was available or likely to be available in the near future.

I know this now…but I didn’t know it back then. Discovering hostility towards PrEP was unexpected and came with a hefty emotional price tag for me.

My own PrEP journey was a very short lived one indeed! Late one Tuesday evening (11th Aug). I managed to get hold of 2 months of Truvada from a HIV positive friend who had changed his meds. I decided that I would document my experience, every sexual encounter, chill out, sex party and screen for STIs every month for 6 months and write my Truvada Diary.

The next morning I hopped on a bus to Dean Street Express to have a HIV test to confirm that I was HIV negative (last tested negative Easter 2014) I had written the opening section of my PrEP journey by the time I had arrived at the clinic. 20 minutes later I was diagnosed as HIV positive. The irony! So that put an end to my PrEP diary. Instead I began writing my diagnosis diaries – This is Me part 1, part 2 and part 3.

My public disclosure on social media and the subsequent publishing of my diaries raised my visibility and awareness of PrEP and the immediate necessity for it so much that I just couldn’t cope with the amount of enquiries that I would receive on Facebook, Twitter and email.

This is when the option of importing generic PrEP was brought to my attention and really took hold. After a few
discussions with my buddy Alex Craddock and meetings some knowledgeable friends, the idea for www.iwantPrEPnow.co.uk was born.

We were going to build a website with all of the info you needed on PrEP and with links to buy genuine and legitimate generic PrEP from trusted sellers. We knew the website would take us about 4-5 weeks to build in our free time so we set about that with immediate effect.

What I identified I could do in the interim between that point and our launch was to raise awareness and test the waters. I want to gauge exactly what the feeling towards PrEP was.

We would be making access to PrEP a reality and not just raising awareness of some unobtainable new HIV prevention concept.

The reaction was not what I expected and not what I wanted to deal with at that time in my life but there wasn’t much choice.

PrEP was being smacked down quite regularly and quite aggressively.

Here I was, a very newly diagnosed HIV positive gay guy being berated and attacked for pushing for PrEP.

It was a little heartbreaking.

Why couldn’t these people see the potential of PrEP?

Why were they so averse to the idea?

I realised I had to reconcile that within myself and find a way to relate and connect to these people. The solution presented itself quite clearly and promptly. Just be honest. Just tell your story.

No one wants to catch HIV. There is a tool that is almost 100% effective at protecting you from HIV.

I managed to get hold of it. But I was a few months too late. Just state the situation and leave it there.

It seemed to work.

I was also aware that people don’t like to read pieces of text. Especially on something they are not too interested in. So I went with some very simple, very basic images. I am no graphic designer! These memes were created on an app on my iPhone. And here they are…

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It passed by without too much controversy. That wasn’t to last! Next up was a play on Apple’s incredibly irritating auto-correct of the work fuck to duck! If you use the word fuck as much as I do then this little text amend is DUCKING annoying…

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Again, I thought this was palatable. It’s a blue duck – who can have an issue with that? Quite a few people it would seem! Instantly the cries sprang up of

“Are you saying we should abandon condoms?”  

“This is totally irresponsible and reckless of you”

“You are sending out the wrong message here Greg”

“What about other STIs. PrEP doesn’t protect you from those”

I wasn’t really prepared for that reaction and I hadn’t formulated a response. Little did I know that a few short months later I would be so sick and infuriated by that ‘other STIs’ question that I would have lost my patience and found the balls to write an article titled ‘Fuck other STIs’. But at that moment it shook me a little so I tried to dampen the argument with this.

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It immediately silenced those critics. So we were learning and we were on to something. By introducing the word ‘extra’ into the positioning of PrEP we could get people to start thinking about PrEP itself and not what using it implied – ie abandoning condoms. I tested it out with the next image.

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This one went down really well! The very same people who were busting my ass over the barebacking rubber duck were now on board and thanking me for behaving responsibly with a healthy and inclusive message. So I took it a step further.

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Then I put PrEP in the tool kit.

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It seemed too simple but it really was that straight forward. Use the word ‘extra’. Make PrEP an additional tool and position it with condoms – not instead of. People stopped trying to run me out of town! But again, I had a feeling that would be short lived. We hadn’t introduced the sexual element yet. So I ran with this.

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As expected the pitch forks came out again.

What is it with people in the UK and the horror that sets in when something appears to be sexual? I’m still getting my head around that one.

But now the comments coming in were accusing me of trivialising safer sex by releasing the sexy Smurfs. In fact that couldn’t be further from the truth. PrEP is HIV safer sex. So is condomless sex with a HIV positive undetectable guy.

At that point I realised that I wasn’t ever going to be able to please everyone. So I stopped trying.

And that was liberating! For the sake of the objective at hand I decided to revert (temporarily) to inoffensive, non-sexual subject matter.

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The lightbulb was safe and for some reason people liked it. It’s one of my least favorites. I had given up trying to predict what would and would not be received well! The watch was up next.

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When this image went out on Twitter a good friend and colleague from a HIV charity tweeted me to say that he loved the image but that it was factually incorrect.

PrEP is not here as it is not accessible yet.

Little did he know that in a few weeks PrEP would be here and accessible through www.iwantprepnow.co.uk – admitedly not for free but it was here! The images were getting  a fair amount of attention now and I started getting requests. Here are a few of the requests.

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I know this tag line is from Sesame Street but it kind of worked here.

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Who knew gay men loved The Smurfs, The Muppets and Sesame Street?

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And it was no surprise that the Diva went down well!

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Then I changed the direction slightly as the reaction towards PrEP warmed.

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This next image has the wrong tag line again – my mistake. ‘You Got a Friend in Me’ is from Toy Story. The song from Aladdin is ‘You Ain’t Never Had a Friend Like Me’. I didn’t think it was that big of a deal until I happened to catch Aladdin on television a few days ago and watched Genie and Aladdin in that number and in fact – you ain’t never had a friend like PrEP!

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The set isn’t complete without drawing a little attention to slut shaming….

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And realising that the way a person chooses to protect themselves from whatever is and always should be totally their choice and they should be fully supported in the choices they make for themselves.

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Recently I have been able to release a few images that need no disclaimers or pacifiers.

It’s nice to see David Cameron get involved with PrEP…

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And push it real good…

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The website www.iwantPrEPnow.co.uk has even been discussed at BHIVA by Dr Mags Portman.

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At BHIVA’s European HIV Hepatitis Co-infection (EHHC) Conference by Dr Andrew Hill.

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And most recently Alex Craddock (iwantPrEPnow co-founder) featured on Channel 4 News alongside our PrEP siblings and their site PrEPster

In my opinion this year has seen the UK MSM community stop slut shaming and challenging the benefits of PrEP. In the summer most of my conversations about PrEP were loaded with shaming, ridicule, dismissiveness, divisive statements, fear, resistance and a lack of knowledge.

Today with just 2 weeks left of 2015 I can tell you that the amount of interaction and conversations I have with people about PrEP has more than doubled – perhaps even tripled.

Now those conversations are predominantly from people wanting PrEP now with well constructed questions on the finer details and specifics of being on PrEP or preparing to start PrEP.

This is amazing. We have turned a corner and the road ahead looks promising. 2016 is going to be a very exciting year. 

Merry Christmas and a happy new year!

Continue reading “PrEP 2015: a very blue year”

PrEP ain’t for you…or is it?

 

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Jake: I just wanted to ask a PrEP question.

Greg Owen: www.iwantprepnow.co.uk If it’s not on there I’ve failed. lol

Jake: You didn’t fail but I want an answer in slightly more detail. Event based PrEP. Say someone like me who never has unprotected sex… and I can’t remember the last time I slept with someone who didn’t know their qualified status… I don’t want or need to take PrEP. But say I wanted to try unprotected sex with my boyfriend or someone else on one occasion… so taking PrEP just when I needed it. Is this safe? Is it enough to stay neg. I just read all the options… and you say that taking a pill a day is the safest.

Greg Owen: I have a burden of responsibility to actively promote the safest – ie large study (PROUD) tried and tested daily method. That is why it is positioned like that on the site. The EBD (event based dosing) system has been trialled in France. It is called IPERGAY and yes – it is safe. Official figures suggest 86% reduced risk of HIV infection. However there are variables with this method and so therefore requires a conversation like this so that the PrEP user can be educated properly.

I don’t have capacity to do that with everyone and I really would want to because this method opens up the possibility of risks. I hate the word risk used alongside the word PrEP. The variables are the time between 1st dosing and actual sexual interaction (because studies and tests have found that there is not sufficient HIV protection in the anal tissue until about 8 hours after the 1st dose of PrEP) and you also need to address and fully understand doseage etc and by that I mean the number of pills taken, when and duration. And some people say that the study was based on the minimum amount of time and PrEP required for protection so you could expand on your protection by increasing the time between the 1st dose and sex and the length of time you dose after the sex.

The problem I have with this is that info gets relayed from gay to gay and gets muddled in the middle – a bit like chinese whispers. That makes me uncomfortable when the thing being jeopardised is a person’s HIV negative status.

Jake: I’ll refer other gays to your website – I promise.

Greg Owen: I don’t go into these details on the IWPN site for that reason. At the point when it becomes technical and requires someone of authority to advise on this method we direct our users to their local sexual health clinic to discuss it face to face with a clinician. You are a friend , someone I know personally which is why I am discussing it now.

Back to the point… with event based dosing you don’t have that 100% peace of mind that comes with daily PrEP. So in a way you are running the HIV gauntlet again and that negates one of the key benefits of PrEP. But EBD/IPERGAY is a tried and tested method and the whole point of what I do is to share information and although I don’t personally feel comfortable promoting this method of using PrEP, it still offers protection (up to 86% if used properly) that might very well work for someone and so I put it out there.

I guess it boils down to this – any HIV protection is better than none.

But for you Jake – I don’t think PrEP is perhaps the best thing. It’s people who are already involving themselves in high risk behaviour that need to think about it imminently.

If you like using a condom every time you have sex – stick with it. It’s working for you. 

Don’t muddle it. You have good condom adherence. I’m happy that is the case with you. I would be conflicted in advocating PrEP for you if it were to potentially diminsh your condom use.

Jake: Of course. That’s how I feel. It’s not an issue for me. But I’ve never had unprotected sex with my boyfriend. Just thought it might be nice to try. We both think that we’re negative and of course we both need to get tested. But it would be reassuring for both of us if we also did PrEP.

Greg Owen: I disagree. If that really is the case then you don’t need PrEP. Unless you – or you suspect your boyfriend is having BB sex and not being honest about it. If you aren’t and you trust he isn’t…get tested (full screening) and go for it. You really need to weigh up the landscape on a person (or couple) specific basis. If you don’t trust him and don’t wanna discuss that within your relationship there is another option. You can take PrEP on an EBD/IPERGAY system and just don’t tell him.

PrEP empowers the individual.

Jake: He’s not having BB sex. And he doesn’t lie to me. There’s absolutely no reason for him to lie because we’re totally open. That’s the sole purpose of having an open relationship, so that we don’t have to tell lies.

Greg Owen: If that’s how it works in your open relationship I’m happy for you. That is not the way it works in all open relationships.

Jake: Really?

Greg Owen: Yes – from my personal experience and from what I have ascertained through discussing sex and sexual behaviour with many different types of guys in various different situations.

Jake: Why not?

Greg Owen: I’m generalising now but here we go –

Gay men LIE (some not all)
Gay men take risks (most not all)
Gay men do not tell their boyfriends any of the above (some not all)

Also – I can’t imagine you would be too happy informing your boyfriend that you have had sex with me – a HIV positive guy. Protected or not, undetectable or not. You might not feel 100% comfortable telling him this and I understand that.

Jake: But that’s the structure of my relationship. We said we didn’t want any lies or games. So we’re open from the outset and we’re totally honest. It really works. I don’t understand being open and then lying about being open. Makes no sense.

Greg Owen: I agree Jake but you can only be accountable for yourself. You cannot control or dictate what another person does. Regardless if you have made an agreement or not. If your relationship is structured and works like that I am happy for you both. I’m just saying that some people find certain topics difficult to discuss with their partner. That’s why I mentioned the HIV thing as an example. You in effect removed his choice of introducing HIV into his sex life.

Jake: I totally don’t understand what you’ve just said to me. Introducing HIV to our relationship?

Greg Owen: My point is that some guys wouldn’t sleep with a positive guy and that is totally cool with me. If your boyfriend wouldn’t sleep with a positive guy – if that is just one of his sexual boundries and then you sleep with me as an extra in your open relationship, in effect you introduced HIV or more specifically a HIV positive sexual partner into the mix and I don’t think that’s 100% fair. You took a little bit of his choice away. Of course we are speaking hypothetically here as I don’t know your boyfriend or his opinions or prefernces on HIV positive sexual partners. But I find that when it comes to HIV – even though it’s ME that is positive and not you or your boyfriend, we all still need to mindful and considerate towards each other and that extends to how your boyfriend would feel about you having sex with a positive guy ie me. Regardless if you were at risk or not – which you weren’t because I’m undetectable and we wore condoms. I’m just saying some guys dont like it. And that’s not some strange manifestation of internalised HIV shame on my part. I have none. It’s just being considerate towards other people’s feelings. That’s all. I’m just trying to illustrate a point. Sometimes what we get up to in our sex lives isn’t always easy to discuss with one another for a lot of very understandable reasons.

Jake: Well, as I demonstrated. I’m not like that. But I might be introducing HIV every single time I have sex with another man. If I
sleep with a guy who doesn’t know his status though… which is more dangerous.

Greg Owen: Bingo! But an undiagnosed guy is not stigmatised. Even though 80% of new HIV infections come from undiagnosed ‘negative’ guys. You are preaching to the converted.

Let’s put it this way… when I was HIV negative I happily slept with HIV positive guys that I knew were undetectable and who I knew well enough to know that they took their meds regularly and I was even aware enough to try not to put myself in that position on the Tuesday after a Bank Holiday weekend when a HIV positive guy might have been out partying and high since Friday and not taken his meds for 3-4 days therefore resulting in a viral spike above the (generally accepted) 400 mark which starts to become HIV infectious again. I KNEW all of this stuff and I played by those rules ‘most’ of the time but I also slept with other ‘negative’ guys who were ‘definitely sure’ they were negative. I knew the risks and I took them. I’ve told you I can’t pin down the point when I contracted HIV but what I can categorically tell you is this….

I did not get HIV from a HIV positive guy…. I got HIV from a HIV negative guy!

Of course the exchange was from a person that had the virus in their system and technically was HIV positive but there is no doubt in my mind that he was still under the illusion that he was HIV negative.

So I get you. xx

Continue reading “PrEP ain’t for you…or is it?”

The Year of No Fear – HIV today

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What does it mean to be HIV positive today?  

I was diagnosed on 12 August this year and I was lucky. I was diagnosed in what I call ‘the year of no fear’.

Thanks to the PARTNER study and the PROUD study our HIV status, be it positive or negative has less potential to polarize and divide us. The PARTNER study showed that condoms were no longer needed to prevent HIV transmission so long as the HIV positive person had an undetectable viral load on HIV treatment (ART). The PROUD study showed that HIV negative men taking daily PrEP (Pre-Exposure Prophylaxis) were protected against HIV transmission, again even without condoms. For the first time in 30 years we truly have the opportunity to live and thrive as HIV equals.

So I was diagnosed as HIV positive and publicly disclosed my status immediately because I felt empowered by this knowledge and fearless because of these studies. Sure, there would be social hurdles but that’s the amazing part – I’m not a Scientist or a Doctor. They have done their bit by affording me these comforts. Now it’s my turn to do my bit. I’m just an everyday person with no clinical background but what I can do is change people and their preconceptions. I can – we all can.

But the opportunities expand well beyond just deconstructing stigma and establishing equality. We now also have the chance to start winning the fight against HIV and AIDS. It’s time to look to San Francisco for the beacon of hope and pioneering example.

San Francisco is the only city that have stabilised their number of new HIV infections. In the last 3 years they have delivered a 30% reduction. The reasons why are simple. TasP (Treatment as Prevention) where anyone diagnosed with HIV is on effective ART (Antiretroviral Therapy) and are therefore undetectable and non-infectious, combined with PrEP for HIV negative people. 

Always seemingly a step ahead, San Francisco embarked on their RAPID initiative, involving 39 men from July 2014 to December 2014, which implemented a process of treatment at point of diagnosis. This in effect speeded up the process of beginning ART (Antiretroviral Therapy), preventing people from falling out of the system by collapsing some of the steps of the care continuum. Thus reducing the window of onward transmission from infectious newly diagnosed patients.

In the UK the clinical benefits of earlier treatment were shown in an international study called START. It is undoubtedly one of the most important HIV studies of the last decade. It was designed to look at the benefits and risks of early HIV treatment (ART). The results were both exciting and reassuring for people living with HIV today. The following is from HIV i-Base.

Main findings include:

  • HIV treatment was safe for people starting HIV meds with a high CD4 count. Many people in START had a CD4 count above 800.
  • Early treatment led to fewer serious AIDS-related illnesses, even at high CD4 counts.
  • The biggest [negative/general health] impact from early treatment was expected to be on illnesses like heart, liver and kidney disease and some non-AIDS cancers. The opposite was true in that early ART reduced HIV-related illnesses. This is big news.
  • The results were similar in both low- and high-income countries. This should result in making HIV treatment more available in all countries.

Secondly, the results show that benefits of treatment and prevention overlap. Other studies have proven that treatment dramatically reduces HIV transmission. Now people using treatment as prevention (TasP) will know there are direct benefits for their own personal health as well as that of the community.

Ultimately, it’s not about us and our generation. I have two 5 year old nephews and I would love to think that by the time they are in their 20’s that we will have managed to reduce our number of new HIV infections in the UK to such a low level that neither of them need ever worry about contracting HIV as I have. It is for them and our children that we need to take responsibility and action now!

We need to manage and reduce this country’s alarming and unacceptably high number of new HIV infections. Let us put the focus back on the AIDS crisis. There is still an AIDS crisis. Not in this country, here in the UK we have a ‘new HIV infections’ issue – not an AIDS crisis. But in sub-Saharan Africa and even as close by as Eastern Europe and Russia they still have an AIDS crisis.

Our brothers and sisters before us did not die of AIDS so that we could become complacent with HIV and allow ourselves to be immersed in AIDS apathy. It started with them, it can end with us. We have the tools to stop and end HIV and AIDS. We need to use them. 

We can’t allow our privileges to diminish our responsibilities in this global healthcare issue.

Continue reading “The Year of No Fear – HIV today”

PrEP is NOT about SEX

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PrEP is NOT about sex. PrEP is about HIV prevention and the deconstruction of HIV stigma.

Too often online I am met with PrEP shaming. In fact all variants of shaming. You name it and you can be guaranteed that someone will directly or indirectly set about trying to shame you for it. This is our first battle. The battle within ourselves and within our community. Just STOP IT! It’s not helpful or constructive. Fuck it! I will go as far as saying it’s darn right destructive and obstructive!

Why do we do this? And why is bareback sex BAD sex? I’ll tell you why! Because no matter how much we think we may now be accepted and integrated into a mainstream society we are still conditioned to believe that we should not be free to enjoy the kind of sex that we like. It’s a case of…

“Yes, you can fuck that guy up the ass but you better do it with a condom – otherwise you will catch HIV as punishment for being a bad gay”

Or…

“You can fuck that guy up the ass but how dare you ENJOY that sex without a condom because you are using PrEP”

This is in essence what other people are conditioning us to accept. And you can see how ludicrous those statements are.

Originally condoms were used for pregnancy prevention. Condoms were for straight people. Then when AIDS arrived, condoms were for gays and AIDS protection. The kind of sex gay men were engaging in ‘pre-AIDS’ was condomless sex. This was natural, good sex. Now condomless sex is seen as bad bum sex! Barebacking – it even sounds dirty, dangerous and feral.

I honestly couldn’t give a fuck who chooses to wear a condom and who doesn’t. That is each person’s own choice and to be negotiated with whomever he chooses to interact with sexually on a situation specific basis. No one has the right to impose their moral judgements on anyone else. Especially not when it comes to something so personal and intimate as the kind of sex we should or should not be having. As long as we are all responsible and considerate. PrEP is both responsible and considerate.

I find with people in general (not just gay men) that they don’t respond very well to being told “DON’T do this” or “DON’T do that”. Instead what they respond to positively and embracingly is been offered something they ‘can DO’ ie be given the choice of opting in for PrEP.

Here is an unused section of the interview I gave to HIV Equal. I thought it was worth sharing .

PrEP and slut-shaming
PrEP has been stigmatised here but attitudes are changing quickly, people are really switching on to the idea now… here is a post that I put on facebook…

“It seems our PrEP website users are as capable of taking matters into their own hands as much as we are… We haven’t managed to secure ANY funding yet and so currently have no promotional and marketing budget to allocate to producing some branded items… But Mark (our first IWPN user to post his PrEP delivery) has decided that he’s got this covered! He took the artwork and logo and created (and paid for) his own www.iwantprepnow.co.uk  t-shirt that he is proudly going to wear on holiday!!! You see this is what PrEP is all about!!!! Forget about ‘little blue pills’ forget about ‘sex’!! It’s not about that – it’s this simple…PrEP can help our mates stay HIV negative and help kill stigma towards HIV positive people like me. It’s a community thing that benefits ALL of us. PrEP ‘shouldn’t’ be my fight!!! It’s too late for me to take it…so that is EXACTLY why it IS my fight and YOURS TOO. We all want to help our mates stay happy and stay healthy… We ALL support PrEP – it might just take some of us a little while to realise it – but that’s cool too Xx”

How www.iwantprepnow.co.uk came about
I started a big push on raising awareness of PrEP at the beginning of this year. No one else was really doing that here in the UK. As the momentum and interest grew so did the volume of messages I was getting in my facebook and Twitter inboxes. More and more guys were contacting me directly asking for info and where/how to get PrEP. I was struggling to keep up with the enquiries and so I spoke with my buddy Alex Craddock the co-founder of IWPN who was and is currently using PrEP (daily) as HIV protection and we agreed that it was a bit ridiculous that there wasn’t 1 place/site with all of the basic info you need about PrEP, supporting documents and links to trusted sites to purchase tested and verified generic PrEP. And that was its point of conception. Neither of us had the capacity to continue acting as an online PrEP help desk or call centre for PrEP info and access. We did some research and had some guidance from the right people and within 4 weeks we were live.

PrEP and the NHS
It is frustrating of course because over the last 30 years in the battle against HIV and AIDS, despite everyone’s best intentions and efforts – what we have been doing has not worked. That is not to diminish the huge amount of work, passion, heart and soul that my peers and predecessors contributed. Until recently the use of condoms, abstinence or remaining in a totally 100% monogamous relationship with another HIV negative person were the only options. Recently though with the release of the findings from The Partner Study we have discovered and begun to acknowledge and accept that condom-less sex with a HIV positive and undetectable guy is also HIV safer sex, it is practically impossible for an undetectable guy to pass on the virus.
Now we have the option of PrEP as another tool for HIV protection. The protection PrEP offers is close to 100%. A guy in the Damon L Jacob’s Facebook group ‘PrEP FACTS’ worked out the figures…here they are from his calculations…

“Almost nothing in medicine is 100%, probably including PrEP. But the research suggests that daily Truvada reduces the risk of acquiring HIV by 96% or even 99%. At 99%, that takes your 1.4% per incident risk down to 0.014%. If an HIV-postive partner is on effective HAART and virally suppressed, there is additional 96% risk reduction (at least), bringing the 0.014% down to 0.0006%. This is very close to zero.”

To put it very simply and at the risk of setting myself up for attack from ‘condom advocates’…

Condoms – even readily available FREE condoms aren’t working to reduce new infections.

If you don’t use a condom every single time you have any sex even oral sex then you are not 100% protected and even if you do manage to use a condom every single time you have sex – it can still break.

And this is the beauty and game changing potential of PrEP. If you take PrEP daily – you are HIV PROTECTED!

Here in the UK it costs the NHS about £20,000 per year to treat a HIV positive person. But to provide Truvada as PrEP for a HIV negative person would only cost the NHS about £5000 per year. If you want to take that a step further, generic PrEP can be purchased through our website for about £45 per month. So a year’s supply would only cost £540. That is one hell of a price comparison.

Of course these are just figures and price tags. The human/emotional value of helping someone remain HIV negative is priceless and on that front we can no longer shrug our responsibilities.

For the first time in 30 years we now have the chance to start winning. Winning against stigma too. If a negative guy is on PrEP he doesn’t need to concern himself with anyone else’s HIV status because he is protecting his own HIV negative status (and his sexual partners HIV negative statuses) by using PrEP – he is in total control.

San Francisco is the only city that have stabilised and are now reducing their number of new HIV infections. The reasons why are simple. TASP (Treatment as Prevention) where HIV positive guys are on effective ART (Antiretroviral Therapy) and are therefore HIV undetectable and non-infectious combined with PrEP for HIV negative guys. Can you see how perfect this combination is?

Positive guys can’t pass on HIV and negative guys can’t catch it. This is how we are going to win.

It’s not about us and our generation. I have two 5 year old nephews and I would love to think that by the time they are in their 20’s that we will have managed to reduce our number of new HIV infections in the UK to such a low level that neither of them need ever worry about contracting HIV as I have. It is for them and our straight friend’s kids that we need to own this and take responsibility and action NOW!

My long term goals for PrEP and TASP are to manage and reduce this country’s alarming and unacceptable number of new HIV infections then once we have our house in order lets put the focus back on the AIDS crisis. There is still an AIDS crisis. Not in this country, here in the UK we have a ‘new HIV infections’ issue – not an AIDS crisis. But in sub-Saharan Africa and even as close by as Eastern Europe and Russia they still have an AIDS crisis. We can’t allow our privileges to diminish our responsibilities in this global health care issue.

Continue reading “PrEP is NOT about SEX”

Get free P(r)EP on the NHS – NOW

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You can get Truvada to use as PrEP for free on the NHS – NOW. Here’s how…

There IS actually a way to get PrEP for free on the NHS. It means working the system! And being a little bit dishonest. But if a little white lie is going to get you some free drugs to keep you HIV negative – is it forgivable? This process is called ‘clinic hopping’ more specifically ‘clinic hopping’ for PEP. And claiming a false risk of exposure to HIV

PEP is 4 weeks of treatment that is offered free if you have been at risk or exposed to HIV in the last 72 hours. They will test you for HIV at your appointment and do all the base line liver and kidney tests etc. Some sexual health clinics will give you the whole month of pills straight away at your first appointment. Others will give you 1 week of treatment and then you have to return for a check up at the end of that week and be given your remaining 3 weeks of PEP. So the system is simple. PEP consists of 1 Truvada and 1 Raltegravir pill in the morning and 1 more Raltegravir pill in the evening. So if you do the math and you are scamming the system for 3 pills a day and only taking 1…you are wasting 2/3 of what it costs the NHS to provide that. PrEP guys only need/want the 1 Truvada daily. So you can get PrEP on the NHS but you have to work them by getting them to give you PEP. This ‘clinic hopping’ is already a thing and is already happening in London (a lot) and with the rise of PrEP awareness and the knowledge of this method of accessing it…it will happen a lot more, at a lot of wasted expense to the NHS….Surely someone in the NHS can see this coming and behave proactively NOW to prevent this waste of much needed funds instead of reactively once we’re another year down the line….with thousands of pounds being wasted.

I know of people who will spend 1 day going around 2-3 clinics or A&E departments collecting 3 month’s supply in one day because sexual health clinics here in the UK operate a ‘confidential stand alone service’ and don’t communicate data with each other or your GP without your permission. You can in effect be anonymous at each clinic as you don’t need to provide any ID or proof of address. So at 1 clinic you could be John Smith at another you could be Peter Pepper. Some of these ‘clinic hoppers’ take their PrEP pill every other day so 28 pills actually lasts them 2 months.

I asked a representative from a leading London sexual health clinic about ‘clinic hopping’…

Are you as a clinic aware that ‘clinic hopping’ for PrEP is happening in London?

NHS availability (or otherwise) of certain drugs regarding Hepatitis C (Harvoni/Sofosbuvir ) and HIV protection in the form of PrEP have created a climate of people sourcing their own medicines their own way or sometimes ‘scamming the system’. This is entirely understandable; even heartening that people are being inventive and proactive in their desire to protect themselves and partners from infection. However, it can be dangerous when done in the absence of medical supervision, and so cannot be condoned.

So if a guy managed to get his Truvada as PrEP through this method but had queries or concerns about taking PrEP or his HIV status, what support is there for him?

What we don’t want to happen is for people to be frightened to tell us that they are scamming the system; because even though we may sometimes be limited in the medicines we can prescribe for PrEP and HCV treatment, there is still very helpful advice that our staff are able to give people doing that. No one is going to get reprimanded or told off for telling us how they’re ‘scamming the system’ or how they are trying to stay HIV negative. If someone has a supply of PrEP (regardless of how/where they sourced it) and they need advice then we can give that very practical, medical and lifestyle advice to people wishing to stay negative. We don’t want people to avoid us or omit truths because they are frightened they are going to get in trouble. We are aware there is a climate of  scamming or ‘clinic hopping’ for medicines and – though we can’t condone it – we encourage people – guilt free to come and tell us what they are doing to try to stay HIV negative. The desire to protect ourselves and our partners from infection,  is always an admirable and commendable one; full disclosure, can help us to help you.

Continue reading “Get free P(r)EP on the NHS – NOW”

It’s cheaper to stay HIV neg. HIV+ is expensive

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I’m writing out of pure frustration today. The more involved I become in the HIV/PrEP arena the more it seems that the solutions we are desperately searching for are already here! We just aren’t joining up the dots.

I’m going to kick off trying to defuse my frustrations by starting with PrEP. Particularly in light of last Friday’s News headlines.

The Guardian, Fri 9th October 2015

“NHS hospitals’ £930m overspend prompts calls for urgent funding”

“Fears grow that hospitals will run out of money and care standards will deteriorate unless chancellor injects more cash”

BBC News, Fri 9th October 2015

“NHS deficits hit ‘massive’ £930m”

“NHS trusts in England have racked up a £930m deficit in the first three months of the financial year – that is more than the entire overspend last year.”

“Regulators said the problems were the “worst for a generation” and demanded immediate action be taken.”

So the NHS have over spent! Big surprise… Well wake the fuck up people! If you haven’t been given enough funds to start with – and you only spend what you need to – YOU WILL TECHNICALLY OVERSPEND! I’m not exactly sure why this was worthy of such sensationalist headline attention on Friday. Although £930m is a substantial figure – we need to put it into context. They overspent by £930m in the first quarter. So if we multiply that by 4 to get a projection of what their total overspend for the year would be (at current performance) that would be an annual deficit of £3.72 billion. The NHS has a total annual budget of £95.6 billion. So that equates to an overspend of 3.6%. In any budget I have ever compiled in my previous career in accounts for staffing and marketing – we always had a contingency of 5%-10% of the overall budget to allow for the unknown or to cover things that might go wrong. However…

 “The NHS are projected to overspend on their annual budget by 3.6 percent” – isn’t such a punchy headline.

Semantics aside. £930m is still a lot of money. It’s clear that the NHS needs to save money. And this is where I keep getting frustrated. Especially in regards to HIV treatment and PrEP HIV prevention. Time for some more figures (please stick with me on this)

Every single day, here in the UK, 10 ‘men who have sex with men’ – that’s gay or bi men (cis or trans) catch HIV.

10 gay/bi guys a day get HIV.

Let that figure settle in for a moment.

HIV treatment for a positive guy (drugs + health care ie seeing Nurses and Consultants + any counselling that might be needed) costs approx. £20,000 per person, per year

So if we say 10 guys per day get HIV…there are 365 days per year…

10 x 365 = 3650 guys per year

3650 guys x £20,000 = £73,000,000 (per year)

So with our little series of calculations we can all agree that new HIV cases will cost the NHS £73m per year.

With that £73m figure in mind. Let’s work out the cost of giving 3650 guys PrEP for a year.

I’m using the price from Dean Street’s PrEP clinic website…

1 month of PrEP costs £400

 So 1 year’s PrEP costs 12 months x £400 = £4,800 per person

3,650 guys x £4,800 = £17,520,000 (per year) to keep these guys negative. Negative guys generally won’t need to be in clinics regularly or require on going health care and support for HIV – if they haven’t got it.

Now we can work out how much the NHS would SAVE if none of these 3,650 guys ever got HIV because they were all on (free NHS supplied) PrEP

£73m – £17.5m = £55.5m

STOP THE FUCKING PRESS!

We could actually (in theory) save the NHS £55.5 million per year just by getting our mates on PrEP and keeping them HIV NEGATIVE…..

Doesn’t take a genius to work it out…..

MAKE PrEP AVAILABLE FOR FREE NOW….

JOIN THE FUCKING DOTS…….

Continue reading “It’s cheaper to stay HIV neg. HIV+ is expensive”